#2686
Siriporn
Member

1) How can engagement efforts impact a participant’s experience in a trial? Do you have a concrete example from your own work?
Engagement effort can help participant more understanding study and also make positively the participants experience in a trial, I believe that engagement efforts in the community have positive impact on participants experience in the trial. These efforts provide a sense in the minds of the community people that the outcome of the trial is their direct contribution that they have worked towards and their fore share the benefits/achievement with the researchers.
From my experiences for Test and Treat study in MSM/TG, prior start recruitment staff have forum with activist, CAB and key persons. These meeting we receive more information about any concerns of group such as side effect of early ARV initiation, concern and confuse about process in protocol. We have plan for every process of study as community concern .
2) How did CAPRISA’s comprehensive approach contribute to their success and network of relationships?
CAPRISA’ team has good process to engage community and comprehensive approach contributed to their success and network of relationships in such a way that it conducted targeted outreaches to educated about the trial, learn about cultural factors that might affect the trial.
3) What are some examples of how you have sustained relationships with communities after and between trials?
We continually make an effort to schedule in-service presentations for staff and clients at our partner organizations and at various stakeholder organizations and groups. We also engage previous participants and other folks with whom we have made relationships before and during a trial. We have CAB meeting in every 3 months also. After study close out, we still have meeting with CAB. We will report them about close out plan, progression of study result.