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Formative research is very important. If we have insufficient resources, we have to continue working with partners, including local academia. Some local universities here have course to work with “real clients”. So we could have the opportunity to dvelop an alliance that include, interviews, focus groups, community meetings and the participation of community stakeholders in the process.
Part of the work include to develop a good communication strategy for the different stakeholders we want them to buy in and support our engagement program. In the case of health authorities to develop print resume material of the protocol, addressing national health priorities and face to face meetings. For community stakeholders, include a Community Advisory Board as part of the assessing boards of the research unit; grupal and individual meetings with leaders, develop communication material and use of the social networks. For media: media trainning, interviews, periodical notes. It is important to develop specific products for the stakeholders we consider as the most important.
training events is a good strategy to retain community stakeholders. These trainning sessions have to combine your and their interest.
MaRstakeholders engagement is very important and also their understanding of good practices. Many times the leadership and team members from sites did not understand that community value. In my case, I had the opportunity t proved the stakeholders engagement when we were running the iPrEx study. We conduct more than 10 CAB meetings so cabbies had the opportunity to reviewed, understand and made recommendations for the protocol an inform consents. all these meeting had the participation form the investigators and team members. We also develop a communication strategy to had specific interviews and community meeting with LGBT and other community stakeholders. Our strategy also included meetings with other stakeholders as health providers. As much information you can spread is better.
Hi!! I am María del Rosario (MaR) León and I am Head of the Community Involvement Unit at IMPACTA Peru Clinical trials unit and had experience working on HV trials for more than 10 years. I work on community engagement, community education and communications with my team of educators and recruters. I want to refresh and improve my knowledge about good participatory practice around clinical (HIV and TB) and to share these kwonledges with CAB members and to improve our community engagement activities and monitoring of them.
