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Hello Isac,
I agree with Mark. My main concern about the CAB is that, even when they are good representatives of the communities involved, they cannot be the only reference of the communities interests and expectations, because there are a lot of voices we are missing, and they cannot talk for all of them for obvious reasons. To my mind, applying focus groups, community forums and surveys are the best way to ensure and prove that we are actually working for listen and respect a community voice. Of course, this would be a tool to complement (and never replace) the work of the different CAB’s, and it can even be use as a guide for them, in order to best represent the voices of the communities they represent.
The information obtained trough this methods could be significantly important to represent a research communty. So yes, we need to focus on function rather than anything else, in order to achieve our goals.
Hello everyone. In addition to all the relevant things you had mention, I think it is important to highlight that different communities may need different engagement strategies. For instance, we had a pretty good experience implementing a Health Tutors Program for one of the studies here in Perú, to provide a closer approach an assistance for MSM and transgender people. As a result of this approach, we were able no only to realise that this populations face unique and harder barriers for their engagement, but also to help them to overcome those barriers in order to achieve a better engagement, and it worked.
The link with the community and the CBOs are also important, because it is the way the clinics and institutes have for demonstrate their commitment with the development of the vulnerable populations. To sum up: The better quality of live, the better levels of engagement.
