Forum Replies Created
-
Replies
-
When resources are insufficient to support formal formative research activities, we have partnered with other research programs who may already be partnering with the communities. In this way we can potentially leverage the fact that a group has already gathered a group of key informants or a focus group and we might be able to add questions onto a survey or participate/partner in the focus group management. Additionally, I would agree that capitalizing on staff both being members of the community and knowledgeable about the communities they are members of can be leveraged.
Sorry my response is so late. We are currently gathering stakeholders from various CABs throughout our area so that our community stakeholders are able to bring back information to all of the many CABs and discuss what is going on throughout our area. I believe our engagement program does a very good job at listening to individuals throughout the community – especially since we are such a large community with over 13 million people in our area. What we are not as good at is having our investigators, sponsors and funders as engaged as I would like.
While we endeavor to have this understanding, it is often a low priority for principal investigators. Investigators must present to our CABs at least once or twice a year, but this is insufficient. We will be instituting mandatory GPP seminars for post-docs and seed grant recipients doing human subjects research of any kind in the coming year to encourage good participatory practice and stakeholder engagement.
Good morning! My name is Faith Landsman and I am the Administrative Director of the UCLA CFAR Clinical Research Core in Los Angeles. We are a site for the ACTG, AIDS Malignancy Consortium, the HPTN and the MTN. My role is, in large part, to partner with communities and to make sure that investigators are able to make strong partnerships in communities that they work with. I look forward to learning with you all!
