An Overview of Developmental Disabilities across the Lifespan (recorded webinar)
Date: March 21, 2022
Time: 6:00-8:30PM PST
Course Description
This session will provide dental providers and their support personnel with an understanding of people with Special Health Care Needs and what constitutes a developmental disability. It will describe the challenges people with developmental disabilities face to access specialized dental care. The session will highlight some real-time stories on self-advocate’s perception of specialized dental care in California.
Learning Objectives
- Learn from a self-advocate’s experience accessing specialized dental care in San Francisco, California.
- Understand the definition of people with Special Health Care Needs and identify what comprises a developmental disability.
- Understand challenges faced by Young adults with developmental disabilities to access health care services.
- Understand challenges faced by Children and Young adults with developmental disabilities to access specialized dental care.
- Understand the importance of supported decision making and/or Informed consent for people with developmental disabilities.
- Learn ways to optimize health care access and delivery during the transition to adult care for adolescents and young adults with developmental disabilities.
Know your Speakers
Rachel Kripke-Ludwig
Rachel Kripke-Ludwig (she/hers) is a nonspeaking, college-bound autistic advocate. She attends Open Mind School in Menlo Park and is a Community Partner in the AASPIRE Community Based Participatory Research Group, working on a five-year project to develop tools to measure outcomes for adult autism services. She is also on the Community Advisory Council of CommunicationFIRST, the only nonprofit organization dedicated to protecting and advancing the civil rights of people who cannot rely on speech to communicate. To learn more please see, Rachel Tells It All.
Megumi J Okumura, MD, MAS
Dr. Megumi Okumura’s research is aimed at studying and formulating interventions that will address barriers and facilitators to chronic illness care for children with special health care needs as they transition from the pediatric to adult health care setting. She is dual board-certified in general pediatrics and internal medicine and therefore has a unique perspective on the health care issues affecting the entire age spectrum of patients with childhood-onset chronic illnesses. Her research and professional goal is to improve health care quality for youth and young adults with chronic conditions as they transition from pediatric to adult health care. Ultimately, she intends to apply her research to chronic illness care across the lifespan. Dr. Okumura’s current research program focuses on studies that will inform ways to improve the quality of health care among adolescents and young adults with chronic conditions. In order to best design programs that can help these YSHCN, her research has focused on epidemiologic studies of health care utilization and health care needs. Her work has focused on interventions that will assist YSHCN transition from pediatric to adult health care. She has focused her interventions within the primary care setting as well as in subspecialty care (Cystic Fibrosis and Diabetes). Additionally, she works with community partners around the Bay Area to help develop mechanisms to improve the care of persons with disabilities in the community.
Dr. Clarissa Kripke, MD, FAAFP
Dr. Clarissa Kripke is a Clinical Professor of Family and Community Medicine at the University of California San Francisco. She directs the Office of Developmental Primary Care whose mission is to build the capacity of the healthcare system to serve transition-age youth and adults with developmental disabilities. She is a primary care physician to some of the Bay Areas most medically fragile and behaviorally complex patients. She is also Vice-Chair of the board of CommunicationFirst, a nonprofit whose mission is to advocate for the rights of people for whom speech is not reliable communication.
Tara Glavin, MA, BCBA
Tara Glavin is a Board Certified Behavior Analyst (BCBA) at The UCSF Center for ASD & NDDs. She graduated with a Bachelor of Arts degree from Marquette University in Milwaukee. She obtained her Master of the Arts degree in Teaching and Special Education from Roosevelt University in Chicago and became a BCBA at Stony Brook University in New York. Tara has extensive experience supporting individuals with ASD and other NDDs in the classroom, individual settings, and the community. She now trains other professionals, community members, and families in the support of persons with ASD.
Geraldine Collins-Bride, RN, MS, ANP-BC, FAAN
Gerri Collins-Bride is an adult nurse practitioner and Professor Emeritus in the UCSF School of Nursing where she is the Co-director of the Adult Gerontology Primary Care Nurse Practitioner program. For over 35 years she has been practicing in General Internal Medicine at UCSF as a primary care provider for adults with developmental and psychiatric disabilities. She is a member of the Redwood Coast Regional Center Telemedicine “TACT” team and for the past twenty years, co-chairs the annual CME course on “Developmental Disabilities: An Update for Health Professionals” with her partner, Dr. Lucy Crain.
Ben Meisel, MD, FAAP
(Moderator)
“Dr. Ben” is a pediatrician and Fellow of the American Academy of Pediatrics focused on improving the lives of children with special health needs. He serves as Medical Director of California Children’s Services San Francisco, is a UCSF Associate Professor of Clinical Pediatrics, and is former Medical Director of The Painted Turtle – California’s SeriousFun Children’s Network California camp founded by actor Paul Newman. He brings special needs advocacy to initiatives including CavityFree SF, UCSF Chronic Illness Center, SF Special Needs Anesthesia Dentistry Workgroup and SF C2A Transition Workgroup. He will be serving as guest editor of the California Dental Association’s 2022 Journal edition on Oral Health Care for People with Disabilities. In addition to his medical career, Dr. Ben is an award-winning children’s recording artist and founder of Dr. Ben & Company, “Building Play Into Health” for children with special health needs.
Pease fill out the evaluation after you have completed the course in order to receive CDE credits.
